When our children were given the diagnosis of cystic fibrosis, all we had was devastating statistics and hope. We always have hope! Our hope has given way to confidence and our confidence to the expectation that one day a cure will be found. It’s not if but when. 

 

Our family has spent the last year attending national CF Foundation events. During our year on the road to a cure we have been deeply encouraged by the strategic and strong leadership of the CF Foundation. They are determined, innovative and passionate. It was also a true gift to be reminded of the community of fighters among us and share stories of overcoming. The CF community is powerfully strengthened by those who have no DNA connection to CF, choosing to make the path marked out for us, marked for them.

 

The journey to end cystic fibrosis isn’t a straight line. It’s an evolving map with many paths and unique challenges. We anticipate that advancing a genetic therapy will cost ten times more than the development of a modulator a decade ago. This is costly but important work and will give the breath of hope we have been waiting for and working towards for Helen, Hayes and all who live with CF. Thank you for pouring into our fight to help us finish this story! Together, let’s write the last chapter of CF.